Monday, December 31, 2007
Baby's First Bouncer
Monday Morning Report
Sarah weighed in last night at 3 lbs 5 ounces. The baby girl is growing so fast and we love it. She got to restart her bottle feedings yesterday and ate 22 mL's then needed a long nap. The staff is talking about possibly moving Sarah to an open crib. She seems bored and unhappy in her isolette, after all she is over 11 weeks old and in need of new surroundings. The NICU staff suggested I make a mobile to keep her entertained also. That should be fun to make.
Friday, December 28, 2007
Friday morning
And there's a possibility that Nurse Richelle may get reassigned back to Sarah. If you're reading this, Richelle, we'd love to have you back!
Sarah turned 11 weeks old yesterday (happy birthday!) and today she is 37 weeks gestation. That's full term, for those keeping score at home. If she had been born today, she wouldn't technically be considered premature, even though she wouldn't be much bigger than she is now (but would probably be a little bigger). Three more weeks until her due date!
Most of baby Sarah's furniture came yesterday, so dad will get to spend the day tomorrow putting everything together. It's good, too. I needed something to take my mind off the Patriots game, which doesn't air until Saturday night. This should be a good distraction; hopefully the day will fly by.
Thursday, December 27, 2007
Thursday morning
Sarah had a very rough day yesterday, poor little girl. She was doing fine all day until early afternoon, and she started having some minor troubles breathing. Dr. Banks ordered an x-ray, which showed that Sarah had a little cloudiness in one of her lungs. This is VERY COMMON among preemies, so please, stop worrying before you start. When her little tummy gets full, some of the milk comes back up and goes into the lungs. They have started an IV to continue to give her nutrition, and stopped feeding her through the tube. But, she still gained 20 grams last night, and is up to 1430 grams. They also stopped bottle-feeding her, but she may start nippling again today or tomorrow, if everything goes well.
Sarah has switched back from the nasal cannula to the vapotherm machine, but it should be very temporary. She should be off the vapotherm within a day or so. She is also on some antibiotics just to be safe.
After her rough day yesterday, Sarah had a great night, with no alarms, bradys, or apnias. She was a little fuzzy early on, but settled down and slept peacefully from about 1 a.m. on. Her feedings resumed through the feeding tube at 10 mL at 2 a.m., which Sarah was happy to accept.
Nurse Richelle (not Rochelle as I previously misspelled it) has been assigned as the primary nurse on another tiny baby, which means she won't get Sarah anymore. That makes Sarah sad, because Richelle took such good care of Sarah when she had her broken leg. But the other baby needs Richelle's expertise more than Sarah does, which, in the grand scheme, is a good thing!
Wednesday, December 26, 2007
Wednesday morning
Big news over the weekend, Sarah is now taking a full ounce over one hour at each feeding. It seems like so much milk, when she started at just one or two mL at a time. But it's just two tablespoons!
Sarah was wide awake this morning when I got in, and she stayed awake most of the time I was holding her. After about twenty minutes she started to get fussy, and she was in need of a diaper change. They keep saying that she's going to be so easy to potty train, but who do I complain to if she isn't?
Monday, December 24, 2007
Another inspiring story (just in time for Christmas!)
Erika gave me permission to share this story. My dear friend, Danielle, wrote about her daughter, Erryn, and new granddaughter, in her Christmas letter. It is amazingly similar to Sarah's story. I have been trying to say how I feel since Sarah was born, but have never found the words. Danielle is so poetic and eloquent in her writing. I am sharing her story with everyone involved in Sarah's life in an effort to say how deeply moved I am, not just by Sarah, but especially by Roger and Erika, and everyone caring (and praying) for them.
These are parts of Danielle's note:
On September 11th, at 28 weeks, 2 days, Erryn had a beautiful baby girl.. very small (19 ounces, 11 3/4 inch). There have been few moments of elation quite like hers. And a new journey began. Miss Winnifred Mae was named for her two grandmothers, and nicknamed Mini Winnie. For 87 days, my darling girl sat with her, reading to her, taking notes, reading and tabbing her huge book on Preemies. I would sit, knit and watch, all the time wondering about the outcome. Winnie is a fighter. Never has so large a persona been asked to inhabit such a small suit. But she did. Through pneumonia, and having a fragile leg broken, heart rate drops, apnea and transfusions, Winnie perservered. She was the darling of the NICU with nurses battling to care for her, and equally loving her ever-vigilant mother. This story is one of the tireless mother who stands bedside with a sick child and wills them to live. During the roughest of times I would watch Erryn stroke the tiny head of her daughter and say, "Be strong, Winnie, it's not forever, it's just for now." .... Miracles do happen.
"A child was born; a child lived and will thrive, a simple story. But, for all of us, it was filled with angels and heroic gestures so small as to nearly be missed except with the vision of a waiting heart. There is no love greater than that of a mother; a hero quite as grand as a doctor and a nurse; a father whose love builds a support. And I think it sounds like the first Christmas... at least for me." Danielle
And may I say, my feelings exactly! Thank you for taking a moment to allow me to say how deeply moved I am by Erika and Roger's courage and strength, for the flawless symphony of care performed by the NICU staff, and for the unending prayers of family and friends.
Merry Christmas to those who celebrate, and Happy New Year to all!
Grandma Carol
Monday Morning Report
Friday, December 21, 2007
Friday morning

Here's our little baby sleeping in her first onesie! Sure, she is figuratively swimming in it, but still...
Sarah gained a whopping 75 grams last night! Erika said, "that can't be right, that's too much!" Sure enough, Sarah had a big 40 gram poop shortly after being weighed. Nurse Shelly weighed Sarah again, and Sarah had lost 30 grams or so. She now weighs 2 pounds, 12 ounces. Big girl!
Happy 36 weeks gestation, too! You're doing so well!
Thursday, December 20, 2007
Happy 10 Week Birthday!

Sarah lost a little weight last night, but it was another big day yesterday. She was having a little poop trouble, so Nurse Heidi gave her something to help, and Sarah had some explosions over night for Nurse Shelly. Good fun!
And happy birthday, girl! You're ten weeks old today!
Wednesday, December 19, 2007
Wednesday morning
This morning Sarah was all bundled up for me just as I walked in the NICU and Nurse Rochelle handed her right to me. She slept the entire time I held her (Sarah, not Rochelle), and didn't make a peep.
And apparently someone forgot to tell Nurse Rochelle and Nurse Arlene about Sarah's website, and the two of them couldn't get enough of it. Even though they get to see Sarah every day. It's funny how everyone reading the blog wants to visit Sarah, and the nurses that get to see her regularly want even more of her from the blog!
Momma is still sick, unfortunately. Hopefully she'll get better in time to visit Sarah this weekend. Daddy is doing his best to fight off the germs.
Tuesday, December 18, 2007
One of Sarah's busiest days, lunch report

- She graduated from an oral feeding tube to a nasal feeding tube. This makes it easier to nipple feed her with the bottle because the oral tube always got in the way. Also, she finally has nothing in her mouth and can freely explore it with her little fingers!
- She graduated to big(ger) diapers. I noticed this morning that her diaper was a little tight, and apparently the nurse noticed it, too.
- She is no longer on the vapotherm breathing apparatus. She's just using the nasal canula (sp?) with low-flo support. This is HUGE! It is the last, least support that she'll need for breathing. If she has to, she could come home with this. (But we hope she won't need any support, right girl?)
- Her feedings are now up to 26 mL. At lunch today she took 14 mL in the bottle and the rest was fed through her nasal tube. I think she's still only taking the bottle once a day, but that will steadily increase as she gets more used to the whole suck, swallow, breathe exercise.
- Daddy got to hold Sarah at lunch today. I don't usually do that due to time constraints, but the physical therapist (Astri) already had Sarah out, and basically did a nice little hand-off, which I couldn't say no to.
- And, because momma can't see Sarah, we'll post a bunch of pictures tonight, for her benefit and for everyone else out there supporting little Sarah.
Tuesday morning
Sarah gained 35 grams last night, and is now 1215 grams. Over 1200, way to go! Almost 2 lbs. 11 oz.!
And Sarah wants to wish a happy birthday to Grandma Rees, who turns ____ today. Happy ____ Birthday, grandma!
Monday, December 17, 2007
Monday morning report
After several days of good weight gains, Sarah lost ten grams last night. Her weight is now 1180 grams, or 2 pounds 9.5 ounces. She's so big!
A little bad news - momma is sick and can't go see baby Sarah! We don't want to risk bringing anything into the NICU to get Sarah, or any of the other littles ones, sick. I'm still feeling fine and will be making my usual trips to see Sarah, and I'll be taking over Mom's evening holding duties. Fine with me! Get well soon, honey, and don't get me sick, too!
Sunday, December 16, 2007
Weekend Update
Then today Roger and I went to watch her bottle feeding for the second time. She did almost as well eating 12 of 24, but we attribute it to her being tired. Sarah was wide awake from 7-9am, and fell asleep right when it was time to come out to be fed. Here are some pictures of the physical therapist feeding her today. For now she will be getting one bottle a day to be fed by the medical staff since preemies are a little difficult to feed. The look on her face when she actually tastes the milk is priceless! Thanks for the new hat Grandma!
Oh and Sarah weighed in at 1190 grams or 2 lbs 10 ounces last night. Way to go Sarah!
Friday, December 14, 2007
Friday Morning Weigh In
2 POUNDS 8 OUNCES! 1140 grams for those of you watching the grams side.
She is triple her lowest weight and almost triple her birth weight! Her skin looks amazing and her legs seems to have healed well, Thank God. And today is another big day for the big girl. She is supposed to have another eye exam AND she will be given a bottle for the first time today to try it out. Good luck Sarah! Suck, swallow and breathe all together in harmony! And happy 35 weeks!
Thursday, December 13, 2007
The Ultimate Comparison Post
Happy Cast Off Day!
Wednesday, December 12, 2007
Wednesday morning
Tuesday, December 11, 2007
HAPPY TWO MONTHS!!!!
Sarah did have a slight setback last night. She lost 20 grams. But its nothing to be worried about. She's been going up so much, we aren't used to the ups and downs anymore, but they still can happen.
This morning she was awake for the entire half-hour I was holding her. She kept moving her arms, crying for a few seconds, looking around the room, repeat, repeat, repeat. She is so alert. I love watching her explore her surrounding with her eyes, even if everything looks like a blurry mess to her.
Last night mommy and daddy went to an infant safety and CPR class, or, as it's also known, the Britney Spears happy hour. Except it was three hours long. Daddy was tired and grumpy. But we learned a lot and mommy made a big list of things daddy gets to do to make the house ready for Sarah.
Sent from my iPhone
Monday, December 10, 2007
What a difference two months makes!


Monday morning
Sarah had a good weekend; she slept a lot yesterday. We were there for three hours yesterday afternoon and she didn't wake up for more than a few minutes. After all that sleeping, Sarah was wide awake this morning when I was holding her. But, after about ten minutes, she went from wide awake and alert to sleeping soundly in daddy's arms.
Grandma Mimi came to visit Sarah, and got to see first hand how good Sarah is at making a mess. I think Sarah went through three or four diapers in one changing. She just kept going!
Friday, December 7, 2007
Friday morning
I held her again this morning, and I know I said it before, but it's such a great way to start my day. Almost better than Starbucks. I kid! It's way better than Starbucks! (Almost....)
Anyway, I was so excited to hold her, I forgot to ask about her weight. But she is doing great. She had another explosive, four diaper, change-the-bed episode this morning. What a big girl, but not very ladylike......
Yesterday was Erika's father's yarzeit, and I miss him very much (Erika does too!). I know he'd be so proud of little Sarah, and that he is watching over her now. Mark was a great dad, and I hope I can do as well with Sarah as he did with Erika. And Michael and Joe, too.
Thursday, December 6, 2007
Quick Thursday Report
Wednesday, December 5, 2007
Humpday lunch report

Sarah's halfway through the time in her cast (I think). She's scheduled to have it removed on December 10, which can't come fast enough! You go, girl.
Wednesday morning snuggle report
I'm the lucky one that now gets to get up even earlier (at 5 a.m. on the dot, no more snoozing until 5:15), leave the house by 5:30, arrive at the hospital at 5:45, and hold baby Sarah from 5:50 until 6:30.
I LOVE IT!
She's so cute and so sweet and so snuggly. I just love holding her, and would do it all day (or until my arms fell off), if I didn't have to leave. I think we're going to have to get Sarah a sibling real quick because I don't think I want to share her with mom anymore. I even stole mommy's snuggle time yesterday evening, too!
Tuesday, December 4, 2007
Here's a map showing where everyone is
To use the map, click on it once, and then you can zoom in and pan around the map to identify where everyone is. Let's continue to populate the map people. If you want to be included, please click on the link at the right "Where in the World Are You???" and we will update the map. Thanks for all the support!!!
Tuesday morning
Sarah gained 5 grams last night, which is good. We were expecting a possible decrease because on Sunday night she gained 80 grams, and when the gain is so big, sometimes all the weight doesn't stick. So a 5 gram increase is great. But really, with the cast on, and all the molestick protecting Sarah's skin, it's really hard to judge her weight at all. One piece of padding under the cast could weigh a few grams, and one piece taken away could cause a weight loss. So, what I'm saying is, I can't weight to get the darned cast off!
Have a great Tuesday.
Monday, December 3, 2007
Speaking of Miracles...

On this, the eve of Sarah Chaya's first Chanukah, we are so grateful for the miracle that baby Sarah is, so I felt it befitting to share the story of the great miracle of Chanukah...
The story of Chanukkah begins in the reign of Alexander the Great. Alexander conquered Syria, Egypt and Palestine, but allowed the lands under his control to continue observing their own religions and retain a certain degree of autonomy. Under this relatively benevolent rule, many Jews assimilated much of Hellenistic culture, adopting the language, the customs and the dress of the Greeks, in much the same way that Jews in America today blend into the secular American society.
More than a century later, a successor of Alexander, Antiochus IV was in control of the region. He began to oppress the Jews severely, placing a Hellenistic priest in the Temple, massacring Jews, prohibiting the practice of the Jewish religion, and desecrating the Temple by requiring the sacrifice of pigs (a non-kosher animal) on the altar. Two groups opposed Antiochus: a basically nationalistic group led by Mattathias the Hasmonean and his son Judah Maccabee, and a religious traditionalist group known as the Chasidim, the forerunners of the Pharisees (no direct connection to the modern movement known as Chasidism). They joined forces in a revolt against both the assimilation of the Hellenistic Jews and oppression by the Seleucid Greek government. The revolution succeeded and the Temple was rededicated.
According to tradition as recorded in the Talmud, at the time of the re-dedication, there was very little oil left that had not been defiled by the Greeks. Oil was needed for the menorah (candelabrum) in the Temple, which was supposed to burn throughout the night every night. There was only enough oil to burn for one day, yet miraculously, it burned for eight days, the time needed to prepare a fresh supply of oil for the menorah. An eight day festival was declared to commemorate this miracle. (from jewfaqs.org).This should be the first of 120 years of Chanukah's that Sarah gets to celebrate! While she can not have candles in the ICU, we bought Sarah her first Chanukah gift, an electric menorah, that we will light with her every night.
Monday lunch
Monday morning report
Friday, November 30, 2007
Where in the World Are You???

Friday morning
She weighed in over 1000 grams yesterday, most of which is her, but the rest is the cast. We won't be able to get an accurate reading of her weight over the next two weeks, but as long as it keeps going up, we're okay with that. Hopefully when the cast comes off, she really will weigh over a kilogram.
Momma's going to bring some colorful Sharpy markers today, and we're all going to sign Sarah's cast. If we can, we'll keep the cast so that Sarah can see how small she was, when she's old enough to appreciate it.
Have a nice weekend everyone, and keep her in your thoughts.
Thursday, November 29, 2007
Late Evening Report
The doctors decided to put her legs in a cast to try to minimize her moving around too much and displacing the femur. They estimate she will have the cast on for two weeks. We can still hold her and snuggle her as usual, just instead of kangaroo-ing, we will have the swaddle her and hold her in our arms.
Sarah didn't seem phased by any of it, she is not in pain and it hasn't effected her movements much at all. She is still wiggling all her toes just fine. I think the worst part is, because of the cast, Sarah can not lay on her tummy. While she has the cast on, she won't be wearing any of her adorable clothing, so I am sure when the time comes to take off her cast she will have outgrown most of her Micro-clothes! That thought is so exciting. I can't wait to see how big she gets. Her weigh in's will be a little bit off until the cast comes off since they don't know exaclty how much the cast weighs...another reason to look forward to the cast coming off , an accurate weight after all this.
I have decided that we won't be posting pictures of Sarah in her cast because it looks worse than it really is. We will however, be putting up pictures of her in Daddy's arms today. Yay for Daddy snuggle time!
While we realize that this is serious, in the grand scheme of things, we are greatful that nothing that has happened so far is life threatening. We continue to pray for Sarah's growth and good health.
Sarah pulled the pacifier out for this picture
Lunch
Sent from my iPhone
Wednesday, November 28, 2007
Mid week morning report
Sarah is still 810 grams, no gain, no loss, no problem. I think we know where all the weight went. Tomorrow is 7 weeks!
Tuesday, November 27, 2007
Tuesday morning
Everyone in the NICU is so impressed with her, and really, how can you not be impressed with her? You BETTER be impressed, or we're gonna need to have a talk...
Monday, November 26, 2007
Monday Afternoon Update
Fun fact: Panda Bears are born weighing about 3.5 ounces. Sarah's birth weight was 14 ounces. Keep on growth little miss Sarah Bear. You are almost DOUBLE your birth weight! Just another 10 grams to go...Yipee

Monday morning
Sarah gained another 30 grams last night, bringing her weight up to 770 grams, which is about 1 pound, 11 ounces. She was also measured last night, and is longer and has a bigger head. All good news!
She had another transfusion last night, her first in several weeks. She's doing really well and looks fantastic. I'm so proud of her and so is mommy!
Sunday, November 25, 2007
Sunday Report
Thursday, November 22, 2007
Happy Thanksgiving!
Wednesday, November 21, 2007
Morning report
Sarah turns six weeks tomorrow, and she continues to amaze us and everyone around her. As you probably noticed, the blogs are getting less frequent now, which really isn't a bad thing. It's just boring to read the same "No change she's doing well" blog over and over again. So, if you don't see a post for a day, even two, don't worry. We just can't think of anything exciting to write.
Tuesday, November 20, 2007
Tuesday morning report
And, we know where the weight went. She had three big #2's last night, and that accounts for a lot of grams.
Sarah is still doing well on 1 liter of pressure. Despite her size, she is now one of the healthiest babies in the NICU. We're so happy! She's now on 2-1 care, meaning she shares her nurse with another baby. And that's great, because it means when she gets home, mom should be able to handle all the care by herself, right?
On a side note, one of the nurses asked me if I knew any Jewish boys for a nice lawyer in New York, for one of her son's friends. I asked her "She can't find a Jewish boy in New York?! Where is she looking?" And it was one of the Korean nurses that was asking! I was very confused...
Monday, November 19, 2007
Monday lunch report

Blog format update
Monday morning
Sunday, November 18, 2007
Sunday morning
Now, the important stuff. Sarah had a pretty good night. She's having a few episodes with her heart rate and breathing dropping a little, but that's just because they are trying to ween her off the oxygen. If it continues, they will have to put her pressure back up to 2.0 (it's down to 1.5).
She weighed in at 700 grams last night, which is a pretty big gain. Don't be surprised to see it go down a little again. She continues to digest all 14 mL they're feeding her. Such a champ!
Saturday, November 17, 2007
First extended family photos
Friday, November 16, 2007
Post-exam report
Also, another little baby in the NICU is very sick. We don't know if it's a boy or a girl, but it needs prayers too. Think of him (or her)!
Morning!

Thursday, November 15, 2007
Morning report - Daddy is back!
We knew it would happen, and her weight did drop down again. She's 640 grams. But that's okay, because we know where the weight went. She took three (3!!!!) big poops overnight. Even I don't poo three times a night (most nights! j/k)...
I spoke with Dr. Banks for a few minutes this morning, and he said we are just going to continue to watch her feedings and increase them periodically. That's about all there is to do now, as she just needs food food food to grow grow grow.
Erika will hopefully Kangaroo again today and tomorrow, and then on Saturday I will get my first chance. I'm so excited!
Wednesday, November 14, 2007
First Family Photo's
Wednesday-Happy Birthday Grandpa!
Tuesday, November 13, 2007
Tuesday Night Info
Tuesday Update
I am going to sign Roger and I up for the parenting classes that we were supposed to take before she was born. Since that didn't happen, now is the perfect time to learn about Baby Care, The Amazig Newborn, and Infant CPR. I wonder if we will be the only non-pregnant parents in the class. Oh well, circumstances beyond our control. Regardless, I am looking forward to taking the classes over the next few months.
In case anyone was wondering what the next few weeks will hold for Sarah, it seems her only job is to grow. Around week 35 they will start to introduce her to the bottle- so she has about 4 weeks 'til then. Until then she will be eating through her tummy tube. She will also have an eye exam in the next week or so.
Monday, November 12, 2007
Kangaroo, Kangaroo!
Fun fact: Sarah sneezes just like mom- at least 2-6 times. For all the HAL classmates out there reading this, Mr. Koff would so give her a detention for that, just like he gave mom in 8th grade for being disruptive in class.